MY HUSBAND HAS BEEN IN ICU ON A VENTILATOR& WE ARE STUCK.CAN WE GO HOME WITH INTENSIVE CARE AT HOME?

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MY HUSBAND HAS BEEN IN ICU SINCE JANUARY 2020. WITH PNEUMONIA AND A STROKE HE’S GOT A TRACHEOSTOMY AND HE CAN’T COME OFF THE VENTILATOR. WE ARE STUCK. CAN WE GO HOME WITH INTENSIVE CARE AT HOME?

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In last week’s blog, I answered another question from one of our readers where the reader asked

My husband is in ICU for four months, can he go home with intensive care at home?

You can check out last week’s question by clicking on the link here.

In today’s video question, I want to focus on another question from one of our readers.

Mandy says

My husband has been in ICU since January 2020. with pneumonia and a stroke he’s got a tracheostomy and he can’t come off the ventilator. We are stuck. Can we go home with intensive care at home?

So here is what Mandy writes.

Hi Patrik,

My 63 year old husband went into ICU earlier this year with a severe pneumonia.

He then suffered from a stroke a couple of weeks after being admitted into ICU.

Since he suffered from the stroke, he ended up with a tracheostomy, and he’s been in ICU since the sixth of January.

He’s slowly weaning off the ventilator but has poor muscle movement due to all the medicines he was given.

I would like to bring him home with intensive care at home.

He is already getting severely depressed, he’s not being able to talk right now as he can only manage a couple of hours here and there to stay off the ventilator.

Me and my children are spending day and night in ICU in order to be with my husband and he’s not making any progress at all. The ICU team says it’ll be very difficult for him to come off the ventilator. And they say that it might be best if we let nature take its course and let him die.

We don’t agree with that at all, because we know he wants to live.

We can accept if he can’t be weaned off the ventilator and the tracheostomy but we can’t accept him staying in a sterile ICU environment.

What are our options to go home with intensive care at home?

Mandy

Hi Mandy,

Well, thank you Mandy, for writing in and for sharing your situation.

I can totally understand your situation as most of our clients journey started somewhat similar.

I have worked in intensive care for 20 years and I have seen situations like your husband over and over again. And obviously now with what we’re doing with intensive care at home, it does make a lot of sense to get your husband home as quickly as possible.

And not only is it going to be better for your husband to leave ICU as you pointed out to leave the sterile intensive care environment.

You know, it’ll also be better for, you know, his quality of life, of course, he’ll go back into a more natural day and night rhythm because as you would have seen by now in ICU, there’s never any peace and quiet, he probably would have a disturbed day and night rhythm by now.

He probably also has ICU, psychosis and ICU delirium on top of the stroke.

Now, the other thing is, obviously, with your and your children’s situation, you know, you are spending day and night in intensive care.

And I’m sure it impacts on your whole life, you probably can’t work if you were working before, I would imagine it impacts on your children’s life.

And I can only understand that you and your children want to be with your husband 24 hours a day. That’s how important your husband is, of course, and you know, we understand that perfectly well.

So now let’s look at what are your options?

The good news is that you do have options...

Continue reading at: https://intensivecareathome.com/my-husband-has-been-in-icu-since-january-2020-with-pneumonia-and-a-stroke-hes-got-a-tracheostomy-and-he-cant-come-off-the-ventilator-we-are-stuck-can-we-go-home-with-intensive-care-at-home/