My Daughter's on a Ventilator&Tracheostomy&Dialysis, ICU Says She Can't Be Weaned, Can She Go Home?

https://intensivecareathome.com/my-daughters-on-a-ventilator-tracheostomy-dialysis-icu-says-she-cant-be-weaned-can-she-go-home/

My Daughter's on a Ventilator & Tracheostomy & Dialysis, ICU Says She Can't Be Weaned, Can She Go Home?

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Hi, it’s Patrik Hutzel from intensivecareathome.com where we provide tailor-made solutions for long-term ventilated adults and children with tracheostomies and where we also provide tailor-made solutions for hospitals and intensive care units whilst providing quality services for long-term ventilated adults and children with tracheostomies, also otherwise medically complex adults and children at home, including Home BIPAP (bilevel positive airway pressure), Home CPAP (continuous positive airway pressure), also home tracheostomy care when adults and children are not ventilated. We also provide Home TPN (total parenteral nutrition). We provide IV potassium, IV magnesium infusions at home as well as IV antibiotic infusions at home. We also provide port management, central line management, PICC (Peripherally Inserted Central Catheter) line management, Hickman’s line management, as well as palliative care services at home, and that also includes ventilation weaning at home.

We have also provided an emergency department (ED) bypass service for the Western Sydney Local Area Health District as part of a tender in the past, and we have sent critical care nurses into the home to avoid emergency department presentations and keep emergency departments empty as well.

Today, I want to answer a question from Eva who says,

“Hi Patrik,

My daughter is on a ventilator with a tracheostomy, and the doctors are saying she can’t be weaned off the ventilator. She’s also on dialysis. They are suggesting to withdraw life support and let her die and turn off the ventilator. My daughter wants to live. Can we take her home?”

Of course, you can take her home. It’s quite clear that you can go home. You can just have a look at our case studies. We’ve been providing hundreds of thousands, if not millions of hours of Intensive Care at Home nursing now for similar clients in the community that were on the brink of dying in intensive care and they went home to improve their quality of life and in some instances, quality of end of life. Of course, I need to know more about your daughter’s situation. I need to know and understand all the ins and outs. However, let’s just say she is end of life, again, I don’t know the all the ins and outs. She can improve her quality of end of life at home and can have palliative care at home but that might not even be the case.

Many of our clients have been in intensive care sometimes for years, in and out, or for years, months on end and intensive care units often wanted to withdraw treatment and then either the ICUs or the family found out about our service and then we have taken patients home and they have lived at home for long periods of times — years, and they want to live. They want to have a good quality of life and just taking someone out of the intensive care environment just makes a lot of sense. It’s a much more holistic and patient and family-friendly environment compared to an intensive care unit. This makes perfect sense. Intensive care units are depressing environments where you only want to be for short periods of times ideally for critical illness, and then you want to get out of there as quickly as possible.

Now, there are the exceptions to the rule which, Eva, your daughter seems to fall in that category where she’s the exception. She’s been there for months on end, and she’s not going anywhere.

Continue reading at: https://intensivecareathome.com/my-daughters-on-a-ventilator-tracheostomy-dialysis-icu-says-she-cant-be-weaned-can-she-go-home/