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Helping A Baby Get Life Saving Treatment
10 months ago
7
GoFundMe: https://gofund.me/249b6a11
Baby Akin was diagnosed with a rare, life-threatening disease known as aromatic l-amino decarboxylase (AADC) deficiency. This disease leaves the children 100% dependent on caregivers. Fortunately, a new and innovative treatment was recently approved!
The treatment is known as gene therapy, and it is the first brain-administered surgery available. Our daughter had the same treatment. She went from being unable to move and fighting for her life to being an independent little girl. We are working to make sure Alongkorn's son can have the same.
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