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Boy with rare disease could literally be frightened to death
7 years ago
110
Meet the five-year-old boy who has to avoid scary movies and trick or treaters due to a rare brain disease which means he could literally be - SCARED to death. Reed Havlik is one of only 200 people worldwide who has Vanishing White Matter (VWM) disease - a condition that means their bodies nerves deteriorate and disappear. There is no cure and or treatment available - and it is so unusual because a bump to the head, a fever and a FRIGHT can cause a rapid deterioration, coma or death. Reed's mum Erika, 33, said this means that the family and his teacher have to be really careful - especially around Halloween.
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