Power To The Catatonic People

1 month ago
17

This is my son Brian when he was at the U of M hospital in 2022. He had Catatonia real bad and it had to begun to mix with the epilepsy that developed at age 18. his original baseline was severe autism. Just that. They have him on a video eeg here to try to see what is catatonia and what is seizures. I'm supposed to press that button every time he exhibits a symptom of Catatonia. He is sound asleep during most of this, exhibiting a symptom of catatonia called "positioning'. Where the person will sit or stand in really odd positions for minutes or hours and it disrupts their ability to function. Formerly he had only had seizures in his sleep, never Catatonia. that is why i suspect they might be mixing though we don't know, like sometimes seizures manifesting as catatonia. There are nonconvulsive seizures that you can not see with your eyes that can actually do that -manifest as Catatonia, especially in the symptom of Catatonia; immobility/stupor. It is very important to know this because a person can die from nonconvulsive status epilepticus just the same as status epilepticus that includes grandmals & large shaking. The skinny arms are a part of Catatonia too unfortunately. Though the symptom is not on every catatonia check list it is well known. It is not uncommon for people with Catatonia to wind up on a feeding tube. He is not on one here. He was also refused inpatient treatment of the Catatonia, he was given outpatient virtual care. It was the only option allowed him at that time because the U of M hospital does not treat adults with severe autism and catatonia -not after 18, only when they are kids. Brian had formerly developed Catatonia from a prescription from the U of m hospital system for risperdal. That caused neuroleptic malignant syndrome which causes life long chronic catatonia which is what he died of. because people die of catatonia when the medical system refuses to treat it. It might sound weird to say he was refused treatment of the catatonia when he is in the hospital. What they do here is silo catatonia into nonexistant mental health services because pyschiatrists treat that and seizures, are what they address in -hospital. A neurologist treats that so it is in a different department & seizures take precedence -they'll treat those while silo-ing the catatonia -in Michigan here.

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