Why Noah Johnston Would Still Be Alive With 24/7 CCRN Support

Why Noah Johnston Would Still Be Alive With 24/7 CCRN Support

Noah Johnson, 22, died when his ventilator disconnected—NDIS had cut his 24/7 critical care nurses. Learn why ventilator-dependent patients need CCRNs, not support workers.

On December 8th, 2025, 22-year-old Noah Johnson died when his ventilator tube disconnected during the night. He was alone, without the critical care registered nurse (CCRN) support that the NDIS had removed from his plan two years earlier.

Noah's death was preventable. An independent physician confirmed he needed 24/7 ICU-level nursing care. The NDIS ignored this evidence and replaced his critical care nurses with disability support workers, despite knowing any disconnection could result in death within minutes.

In This Video, Patrik Hutzel, Critical Care RN, Explains:
✅ Why Noah needed 24/7 critical care registered nurses (CCRNs)
✅ The fatal difference between CCRNs and disability support workers for ventilator care
✅ What the independent medical evidence said—and why NDIS ignored it
✅ Your legal rights under the NDIS Act for life-preserving supports
✅ How 80% of NDIS appeals are won at tribunal—but Noah didn't live to see his
✅ What a CCRN would have done the night Noah died
✅ Evidence-based mechanical home ventilation guidelines
The Brutal Truth: Using disability support workers instead of critical care nurses for ventilator patients is like flying a plane with cabin crew instead of a pilot.
Noah's Story Must Save Lives:
If you or your loved one is ventilator-dependent with tracheostomy and the NDIS is cutting your nursing support, this video could save your life.

⚠️ URGENT: IS YOUR NDIS PLAN BEING REVIEWED?
Don't wait until it's too late. Contact Intensive Care at Home today:
🌐 IntensiveCareAtHome.com
📧 Get independent clinical assessments for tribunal appeals
📋 Access evidence-based mechanical home ventilation guidelines
⚖️ Expert support for NDIS appeals and AAT hearings
We provide:
✓ 24/7 Critical Care Registered Nurses for ventilator-dependent adults & children
✓ Tracheostomy care with ICU-level expertise
✓ Clinical assessments & tribunal evidence
✓ Education about your legal rights under NDIS legislation

📊 The Statistics NDIS Doesn't Want You to Know:

80%+ of NDIS appeals result in decisions FAVORABLE to participants
The NDIA gets it wrong 8 out of 10 times when cutting supports
But the tribunal process takes months—your loved one needs protection NOW

🔴 CRITICAL: When to Contact Us Immediately:
❌ Your NDIS plan is being reviewed
❌ Nurses are being replaced with support workers
❌ You've been told support workers can manage ventilation/tracheostomy
❌ You need independent assessments for tribunal
❌ You're appealing an NDIS decision about nursing support

💙 Rest in Peace, Noah Johnson
Your death will not be in vain. We're fighting for mandatory CCRN requirements for all ventilator-dependent NDIS participants.

📱 SHARE THIS VIDEO to help other families know their rights and prevent another preventable death.
👍 LIKE if you believe the NDIS must prioritize clinical safety over cost-cutting
🔔 SUBSCRIBE for updates on NDIS advocacy, your legal rights, and evidence-based home ventilation care

💬 COMMENT BELOW:
Have you or a loved one faced similar NDIS cuts to critical nursing support? Share your story to help others.
🆘 NEED HELP NOW? Don't become another statistic.
Visit: IntensiveCareAtHome.com

This video is dedicated to Noah Johnson and his mother Kylie, who fought tirelessly for the care her son deserved. Your advocacy will save lives. 💙