Lita’s Vaccine Injury

via @advocate4lita

Prior to April 2021 our Lita was a healthy mom/daughter/wife/grandmother/business owner/friend.

3.28.21 - Lita received the J&J. Few weeks later initial symptoms included Headaches/Neck Pain/Nausea. After several visits to ER/Specialists/countless blood tests - All tests were NORMAL (MRI, CT, countless blood tests) She has been seen by multiple specialists - Hematologists, Neurologists, Rheumatologists, Psychiatrists/Psychologist, Rehabiliation Specialists
6.12.21- NEW symptoms - difficulty swallowing/speaking & tremors on the rt side of her body. immediately thought it was a stroke, went to ER. Another series of similiar tests run - MRI/CT, more blood tests & lumbar puncture - all NORMAL. After not being able to find anything "medically" wrong with my mom, they discharged us on day 7 of being inpatient. Crazy because my mom couldn't walk unassisted, her symptoms/tremors were consuming her entire body and we had no DME or next steps. Basically they were pushing us out of the hospital. We felt lost and hopeless, advocating for ourselves in a system that is broken.
6.25.21 - Neuro Movement Specialist diagnosed Lita with Funcutional Movement Disorder
7.9.21 - 7.15.21 - Outpatient Rehab OT/PT/Speech Evals have recommended Inpatient Rehab. Painfully slow process. Waiting game...
7.15.21 - Guillain-Barre syndrome elimination due to appt with Rheumatologist reading lumbar puncture results
7.19.21 - NeuroPsych Eval - Pending Referral to CBT
10.11.21 - Waiting for appointment for Neuro Muscular doctor to run EMG

With a brief background of Lita, all we are really trying to say is that we are not going to stop until we find out what is going on. We need answers! These symptoms are having an impact on my mom's life. We saw a dramatic decline in my mom's health and continue to face challenges every day and nothing is "NORMAL" about any of this.

If you know of any resources that you can connect us to we are working all possible routes for help to get my mom back to being "Mom" again. We need ADVOCACY 4 LITA!